CHEST 2023 On Demand Pass-Hiding in Plain Sight: Cystic Fibrosis Diagnosis in Minorities and Adults

Hiding in Plain Sight: Cystic Fibrosis Diagnosis in Minorities and Adults

Video Transcription

Video Summary

This video highlights the need for equity in the diagnosis, treatment, and outcomes of cystic fibrosis (CF). The first speaker discusses the limitations of newborn screening for CF and the variability in practices between states, emphasizing the importance of early intervention. The second speaker presents preliminary data suggesting disparities in outcomes for black people with CF, including lower rates of lung transplantation and potentially higher mortality rates. The third speaker focuses on disparities in access to CFTR modulator therapy, with racial and ethnic minority populations being less likely to qualify for these drugs. The video also highlights other disparities in CF, such as sex disparities in outcomes and the impact of gender on CF care for gender diverse individuals. The need for addressing these disparities and providing equitable care for all CF patients is emphasized, including efforts to understand the impact of different factors, improve access to CF drugs, and support the mental health needs of gender diverse individuals.

Meta Tag

Category Bronchiectasis and CF

Session ID 1040

Speaker Sunjay Devarajan

Speaker William Hunt

Speaker Raksha Jain

Speaker Meghan McGarry

Track Bronchiectasis and Cystic Fibrosis

Keywords

equity

diagnosis

treatment

outcomes

cystic fibrosis

disparities

access

CFTR modulator therapy

gender diverse individuals

addressing disparities